Happy Holidays 2018
Dear Family and Friends,
On behalf of the Fragile X Association of Southern California, I would like to thank each and every one of you for your support this year! Without YOU it would be impossible to achieve our mission and goals year after year. Our non-profit organization is staffed by volunteer Board Members so all donations go straight to our mission. I would like to share what FRAXSOCAL has been up to this year as 2018 comes to a close…
FRAXSOCAL loves Education! On October 6th, we hosted a 1/2 day conference featuring Fragile X Superstars…DR. ELIZABETH BERRYKRAVIS & CINDI ROGERS. FRAXSOCAL also participated in many resource fairs throughout the year including: Stephanie’s Day at CBS Studios, Wrightslaw Conference Resource Fair, Abilities Awareness Fair in Whittier, and CSUN Family Focus Resource Center.
FRAXSOCAL hosted four Family Fun Day’s this year! We started off the year with a Drum Circle in Long Beach in memory of our beloved Naomi Star. In April we held our 6th annual 5K for Fragile X with 200 people in attendance! This was a fun day filled with exercise, awareness, family fun, In & Out Burgers, a live DJ, One Hope wine and fundraising! In the summer we hosted a fun day at We Rock the Spectrum in two locations, Northridge and Long Beach! Finally, on November 4th, we had one of our favorite events…Bowling at Cal State Fullerton!! All these events allow our FX family, new and existing, gather together for a day of fun with no cost to them. Families are able to share their stories with each other, get new ideas and support each other in this FX journey.
FRAXSOCAL Supports! We love to give to the National Fragile X Foundation, the MIND Institute, FRAXA Research, and our local Fragile X Clinic at the Stramski Center! We are so grateful for our local FX clinic including Dr. Gary Feldman and Ioana Pal who help our families get local treatment.
We are EXCITED for 2019 to better serve our community as well as fulfill our mission! Our mission includes: promoting public awareness of Fragile X Syndrome with a special emphasis on educators and health professionals, providing a forum for families and children with Fragile X to meet and share their ideas, concerns and problems, and support scientific research on Fragile X Syndrome.
In order to strive to accomplish these goals we need your continued support. Please consider helping FRAXSOCAL by providing a 100% tax-deductible donation. Any amount is greatly appreciated and always makes a difference. We want to acknowledge all those who help by volunteering their time and talents to our organization! You know who you are but we really want you to understand how much you are appreciated and necessary to fulfilling our mission! Please take a moment to make a safe and secure credit card donation by clicking on the “Donate” link at our website, https://fraxsocal.org, or if you would like to send a check please make check payable to FRAXSOCAL and mail to FRAXSOCAL, P.O. Box 6924, Burbank, CA 91510-6924.
We understand there are many non-profit organizations that you can support, therefore we are extremely honored and grateful when you choose FRAXSOCAL. We wish you a very happy and healthy holiday season and a happy new year!
Sincerely yours,
Jennifer Newsome
FRAXSOCAL President