Happy 25th Anniversary!

My son Tim turned 28 this year and this journey all began when he was diagnosed on November 4, 1993 with FXS. I called the NFXF right away to find out where to find other parents in LA. The only parent listed was Sali Farber in Orange County! The internet was just beginning and the information it held was all very dismal. With the help of Dr. Barbara Wheeler and Deborah Langenbacher at Children’s Hospital University Affiliated Program Sali and I were able to find other families. Our first meeting was held with seven families in my living room in August 1994, 25 years ago! In 1996 we held our first educational conference at Children’s Hospital. In 1997 we became an official non-profit 501 c 3. Read More

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Summer Fun – Kids’ Gym. Two Locations, One Family – FraxSoCal

Summer Fun – Kids’ Gym. Two Locations, One Family – FraxSoCal Northridge location on August 18, 2018 12 noon-3 pm REGISTER @ https://www.eventbrite.com/e/fraxsocals-summer-family-fun-day-northridge-2of2-tickets-48884904064 Long Beach location on August 25, 2018 10 am-1 pm REGISTER @ https://www.eventbrite.com/e/fraxsocals-summer-family-fun-day-lb-tickets-47837433050 This is a FREE PRIVATE event for our families affected by FXS – all ages welcome to play. Equipment is built for all sizes Read More

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About Fragile X Association of Southern California

  The Fragile X Association of Southern California was formed in 1996 to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and support scientific research on Fragile X Syndrome. We are run entirely by Read More

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