Happy 25th Anniversary!

My son Tim turned 28 this year and this journey all began when he was diagnosed on November 4, 1993 with FXS. I called the NFXF right away to find out where to find other parents in LA. The only parent listed was Sali Farber in Orange County! The internet was just beginning and the information it held was all very dismal. With the help of Dr. Barbara Wheeler and Deborah Langenbacher at Children’s Hospital University Affiliated Program Sali and I were able to find other families. Our first meeting was held with seven families in my living room in August 1994, 25 years ago! In 1996 we held our first educational conference at Children’s Hospital. In 1997 we became an official non-profit 501 c 3. Read More

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Our Next Seminar – IEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services

Our Next Seminar – IEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services

Saturday, May 4, 2019
Time: 12:30 pm to 5 pm
Place: Carson Community Center,801 E. Carson St., Carson CA 90745
Suggested Donation: $15 per person
Free Parking | Light Refreshments | No Childcare

JOIN US for an Informative Lecture with Dr. Ioana Pal, PsyD from Stramski Children’s Developmental Center, Fragile X Clinic followed by a parents’ panel. Read More

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