Happy 25th Anniversary!

My son Tim turned 28 this year and this journey all began when he was diagnosed on November 4, 1993 with FXS. I called the NFXF right away to find out where to find other parents in LA. The only parent listed was Sali Farber in Orange County! The internet was just beginning and the information it held was all very dismal. With the help of Dr. Barbara Wheeler and Deborah Langenbacher at Children’s Hospital University Affiliated Program Sali and I were able to find other families. Our first meeting was held with seven families in my living room in August 1994, 25 years ago! In 1996 we held our first educational conference at Children’s Hospital. In 1997 we became an official non-profit 501 c 3. Read More

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Our Next Seminar – IEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services

Our Next Seminar – IEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services

Saturday, May 4, 2019
Time: 12:30 pm to 5 pm
Place: Carson Community Center,801 E. Carson St., Carson CA 90745
Suggested Donation: $15 per person
Free Parking | Light Refreshments | No Childcare

JOIN US for an Informative Lecture with Dr. Ioana Pal, PsyD from Stramski Children’s Developmental Center, Fragile X Clinic followed by a parents’ panel. Read More

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WOW! 5K Race Results

Our 7th Annual 5K Race for Fragile X was a HUGE Success Because of YOU!!It was an INCREDIBLE day of Awareness and Community!We had 6 Sponsors, over 150 people in attendance and raised $11,385!!Thank YOU for all for your support!  We missed those who couldn’t make it out but hope to see you next year!!

SAVE THE DATE…Saturday, April 18, 2020Time: 12:30 pm to 5 pm Place: Carson Community Center,801 E. Carson St., Carson CA 90745Suggested Donation: $15 per personFree Parking | Light Refreshments | No ChildcareIEP Strategies for Fragile X Students: The Role of Parents and Caregivers in Requesting Services JOIN US for an Informative Lecture with Dr. Ioana Pal, PsyD from Stramski Children’s Developmental Center, Fragile X Clinic followed by a parents’ panel. Read More

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Welcome!

We want to welcome you to our website and let you know that you are family! We hope that you find the information you are looking for on this site!!

Our goal is to provide you information about local resources, educational seminars, family fun day events, fundraisers and most importantly connect you to a support system. We are on this journey together!! Read More

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Happy Holidays 2018

Dear Family and Friends,

On behalf of the Fragile X Association of Southern California, I would like to thank each and every one of you for your support this year! Without YOU it would be impossible to achieve our mission and goals year after year. Our non-profit organization is staffed by volunteer Board Members so all donations go straight to our mission. I would like to share what FRAXSOCAL has been up to this year as 2018 comes to a close…

FRAXSOCAL loves Education! On October 6th, we hosted a 1/2 day conference featuring Fragile X Superstars…DR. ELIZABETH BERRYKRAVIS & CINDI ROGERS. FRAXSOCAL also participated in many resource fairs throughout the year including: Stephanie’s Day at CBS Studios, Wrightslaw Conference Resource Fair, Abilities Awareness Fair in Whittier, and CSUN Family Focus Resource Center. Read More

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Thank You for Making 6th Annual 5K for Fragile X a SUCCESS!

We want to thank EVERYONE who played a part in making our 6th Annual 5K for Fragile X a tremendous success! This money will go towards our mission of promoting public awareness, providing education seminars, family fun days and resources to our local families affected by Fragile X! – Jen Newsome, FRAXSOCAL President TOP TEAMS Team Audric  $2,165.00 Team Joaquin  Read More

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Summer Fun – Kids’ Gym. Two Locations, One Family – FraxSoCal

Summer Fun – Kids’ Gym. Two Locations, One Family – FraxSoCal Northridge location on August 18, 2018 12 noon-3 pm REGISTER @ https://www.eventbrite.com/e/fraxsocals-summer-family-fun-day-northridge-2of2-tickets-48884904064 Long Beach location on August 25, 2018 10 am-1 pm REGISTER @ https://www.eventbrite.com/e/fraxsocals-summer-family-fun-day-lb-tickets-47837433050 This is a FREE PRIVATE event for our families affected by FXS – all ages welcome to play. Equipment is built for all sizes Read More

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