Welcome!

We want to welcome you to our website and let you know that you are family! We hope that you find the information you are looking for on this site!!

Our goal is to provide you information about local resources, educational seminars, family fun day events, fundraisers and most importantly connect you to a support system. We are on this journey together!! Read More

Read more

Learn about Fragile X

What is Fragile X?

Fragile X occurs when there is a change, called a mutation, in a single gene called the FMR1 gene. Every human being has this gene. Some people have only a small change in this gene (referred to as a premutation) and may not show any symptoms associated with Fragile X. Persons with the premutation are called carriers and are at risk to develop other related conditions (see FXTAS and FXPOI below). Other people may have bigger changes in the gene (called a full mutation), which can cause the symptoms of Fragile X Syndrome.

Fragile X is inherited, which means it is passed down from parent to child. The changes in the gene can become greater when passed from mother to child, so a woman who has no symptoms related to Fragile X can have a child affected with Fragile X Syndrome. A male carrier can only pass the premutation, and will pass it to all of his daughters, but none of his sons. Fragile X affects people of all ethnicities, races, and socio-economic backgrounds. Fragile X is named because of the appearance of the X chromosome where the gene mutation occurs, not because individuals with the FMR1 mutation are in any way “fragile”. Read More

Read more

About Fragile X Association of Southern California

  The Fragile X Association of Southern California was formed in 1996 to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and support scientific research on Fragile X Syndrome. We are run entirely by Read More

Read more

FRAXSOCAL – Our Mission

FRAGILE X ASSOCIATION of SOUTHERN CALIFORNIA (FRAXSOCAL) Our non-profit organization was formed to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families and children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X Syndrome. The Fragile X Association of Read More

Read more

Happy Holidays 2017-2018!

On behalf of the Fragile X Association of Southern California, I would like to thank every one of you for your support this year! Without YOU it would be impossible to achieve our mission and goals year after year. Our non-profit organization is staffed by volunteer Board Members so all donations go straight to our mission. I would like to share what FRAXSOCAL has been up to this year as 2017 comes to a close…

FRAXSOCAL hosted four Family Fun Days this year! We startted off the year with a Music/Art Workshop at Abie Arts Work in Long Beach. In April, we held our 5th annual 5K for Fragile X with 200 people in attendance! This was a fun day filled with exercise, awareness, family fun, In & Out Burgers, a live DJ, One Hope Wine, and fund-raising! In the summer, we had a private Pool Party at the Dominguez Aquatic Center in Carson, and a Mom’s Night Out at Cheesecake Factory in Anahiem. Finally, on November 11th, we had a bowling event at Cal State Fullerton. All these events allow our FX family, now and existing, to gather together for a day of fun with no cost to them. Families are able to share their stories with each other, get new ideas, and support each other in this FX journey. Read More

Read more

Lorem ipsum dolor sit amet

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Suspendisse nec justo quis leo malesuada volutpat id eget lacus. Cras rhoncus sem ante. Cum sociis natoque penatibus et magnis dis parturient montes, nascetur ridiculus mus. Vivamus dignissim rutrum tincidunt. Etiam tempor luctus elit eget tempus. Integer vehicula libero at lorem elementum sodales. Duis non blandit erat. Sed enim eros, laoreet et Read More

Read more
Page 1 of 41234